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Overcoming barriers to a successful transition from pediatric to adult care
Jennifer L Goralski1,2, Samya Z Nasr3, Ahmet Uluer4,5
1Department of Medicine, The University of North Carolina at Chapel Hill, Chapel Hill, North Carolina.
Insights
Transitioning cystic fibrosis (CF) patients to adult care requires structured programs to ensure continuity. This article explores barriers and successful models for CF transition programs.
Area of Science:
- Medical Care Transition
- Cystic Fibrosis Management
Background:
- Increased life expectancy in cystic fibrosis (CF) necessitates improved care transition.
- Pediatric to adult care transition is crucial for maintaining health continuity.
Purpose of the Study:
- To explore barriers in establishing formal transition programs in CF Centers.
- To present successful models and initiatives supporting CF care transition.
- To highlight the need for continued research in CF transition care.
Main Methods:
- Review of existing Cystic Fibrosis Foundation (CFF) guidelines.
- Analysis of barriers to implementing transition programs.
- Case examples of successful transition program models.
- Description of CFF-sponsored initiatives.
Main Results:
- Formalized transition programs are essential for seamless patient transfer and continuity of care.
- Several barriers hinder the establishment of these programs in CF centers.
- Successful models and supportive initiatives are available.
Conclusions:
- Establishing robust transition programs is vital for the growing adult CF population.
- Addressing identified barriers and utilizing existing resources can facilitate program implementation.
- Further research is needed to optimize CF care transition strategies.
Abstract:
As life expectancy for people with cystic fibrosis (CF) has increased dramatically, so has the need for a guided, structured transition from pediatric to adult-focused care. A formalized transition program allows for seamless transfer of patients between providers, helping to ensure continuity of care, and avoid potential declines associated with inconsistent medical care. New CF Center guidelines issued by the CFF strongly recommend that each center establish a transition program for age-appropriate transition to an adult CF clinic. In this article, we explore the remaining barriers to establishing a transition program in a CF Center and offer examples of several successful models. We describe CFF-sponsored and other initiatives that exist to support centers in establishing a transition program and discuss the need for ongoing research in this area.
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