The relationship between child and caregiver sleep in acute lymphoblastic leukemia maintenance

Lauren C Daniel1,2, Colleen M Walsh3, Lisa J Meltzer4,5

  • 1Department of Psychology, Rutgers University, Camden, 311 North 5th Street, Camden, NJ, 08102, USA. Lauren.Daniel@Rutgers.edu.

Insights

Poor sleep is prevalent in caregivers of children with acute lymphoblastic leukemia (ALL). Interventions should target caregivers of young children, those with poor sleep, and those experiencing high guilt and worry.

Area of Science:

  • Pediatric Oncology
  • Sleep Medicine
  • Psychosocial Oncology

Background:

  • Caregivers of children undergoing cancer treatment face significant challenges.
  • Sleep disturbances are common but understudied in this population.

Purpose of the Study:

  • To describe sleep quality and disturbance in caregivers of children with acute lymphoblastic leukemia (ALL).
  • To examine the relationship between caregiver sleep, child sleep disturbance, and caregiver guilt/worry.

Main Methods:

  • 68 caregivers of children (ages 3-12) with ALL completed validated questionnaires.
  • Measures included caregiver guilt/worry, caregiver sleep quality, and child sleep habits.
  • Correlates of poor caregiver sleep and moderation by guilt/worry were analyzed.

Main Results:

  • Over half of caregivers (55.9%) reported clinically significant poor sleep.
  • Caregiver sleep quality was associated with child's age at diagnosis, child's sleep, and caregiver guilt/worry.
  • Caregiver guilt and worry did not moderate the child-caregiver sleep relationship.

Conclusions:

  • Poor sleep is a common issue for caregivers of children with cancer.
  • Future research should focus on optimal timing and targets for sleep interventions.
  • Interventions may benefit caregivers of young children, those with existing sleep problems, and those with high guilt/worry.
Abstract

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