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Biobank for Translational Medicine: Standard Operating Procedures for Optimal Sample Management
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Biobanking from the patient perspective.

Derick Mitchell1, Jan Geissler2,3, Alison Parry-Jones4

  • 1EU Joint Programme-Neurodegenerative Disease Research (JPND), 1st floor, Liffey Trust Building, 117-126 Upper Sheriff St., Dublin, Ireland.

Research Involvement and Engagement
|October 25, 2017
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Summary

Patients are increasingly becoming active partners in biobanking, contributing valuable perspectives beyond just donations. This shift highlights the crucial role of patient collaboration in advancing biobank research and personalized medicine.

Keywords:
BiobankInvolvementPartneringPatientResearch

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Area of Science:

  • Biomedical research
  • Biobanking
  • Patient engagement

Background:

  • Biobanks are crucial for disease research, evolving towards patient-centered healthcare and personalized medicine.
  • Patient involvement in biobanking is shifting from passive donation to active collaboration.
  • Engaging patients and the public is vital for effective biobanking and research.

Purpose of the Study:

  • To demonstrate the value of patients as collaborators in biobanking.
  • To provide examples of successful patient involvement in biobanks.
  • To inform strategies for future patient and public engagement in biobank research.

Main Methods:

  • Case studies showcasing patient partnership in biobanking.
  • Analysis of patient perspectives as a valuable resource.
  • Review of best practices and lessons learned in patient involvement.

Main Results:

  • Patients are integral collaborators, offering unique insights.
  • Examples of good practice in patient involvement yield positive outcomes.
  • Patient perspectives enhance biobank design, development, and operation.

Conclusions:

  • Patients are essential partners, not just donors, in biobanking.
  • Effective patient involvement requires strategic planning and engagement.
  • Leveraging patient collaboration can significantly benefit biobank research and healthcare.