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Priority setting in research: user led mental health research
Marjorie Ghisoni1, Christine Ann Wilson2, Karen Morgan3
1School of Health Care Sciences, Bangor University, Fron Heulog, Ffriddoedd Road, Bangor, Gwynedd, North Wales LL57 2EF UK.
Research Involvement and Engagement
|October 25, 2017
Summary
People with lived experience of mental illness identified key research priorities. These include improving mental health knowledge in schools and using education for recovery, like peer support.
Area of Science:
- Mental Health Research
- Patient and Public Involvement
- Health Services Research
Background:
- Patient and public involvement is crucial for aligning health research with service user needs.
- Traditionally, research agendas are driven by professionals rather than individuals with lived experience of mental illness.
- This study engaged individuals with lived experience of mental ill health in Wales to identify their research priorities.
Purpose of the Study:
- To explore and identify the primary research priorities of individuals with experience in mental health services.
- To ensure research is relevant and addresses the needs of people using mental health services.
- To inform the National Centre for Mental Health Research Partnership Group and other stakeholders.
Main Methods:
- A nominal group technique was employed to gather data.
- A one-day workshop titled 'Getting Involved in Research: Priority Setting' was conducted.
- Participants included individuals with lived experience of mental ill health, carers, and mental health professionals.
Main Results:
- 120 research ideas were generated by 25 participants across six workstations.
- A three-stage voting process narrowed down the ideas to two main research priorities.
- Key priorities identified were: mental health education for school-aged children and education as a tool for recovery.
Conclusions:
- Two primary research priorities were established: enhancing mental health knowledge among school-aged children to combat stigma and developing education for recovery through methods like peer support.
- A significant discussion also highlighted the need to research support for carers during a patient's recovery.
- The findings will guide future mental health research and funding initiatives.
Keywords:
Delivery of health servicesMental healthPatient and public involvementPriority settingPublic healthResearchUser involvementUser prioritiesMore Related Videos
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