Determining requirements for patient-centred care: a participatory concept mapping study

Area of Science:

• Healthcare Management
• Health Services Research
• Patient Engagement

Background:

• Patient-centered care is a recognized need but challenging for organizations to implement.
• Empirical studies are crucial for understanding patient-centered care complexity and guiding collective action.
• This research aimed to empirically identify organizational actions necessary for achieving patient-centered care.

Purpose of the Study:

• To empirically determine the organizational actions required to achieve patient-centered care.
• To develop a comprehensive conceptual map of patient-centered care requirements.
• To provide a framework for understanding, implementing, and evaluating patient-centered health systems.

Main Methods:

• Utilized participatory concept mapping methodology with cross-sector stakeholders.
• Stakeholders developed, sorted, and rated statements on patient-centered care requirements.
• Data analysis included similarity matrices, multidimensional scaling, and hierarchical cluster analysis to create a visual concept map.

Main Results:

• Developed the Requirements of Patient-Centred Care Systems (ROPCCS) map with 123 statements in 13 clusters.
• Clusters cover areas like health literacy, care partnerships, collaboration, resources, and professional development.
• Three overarching domains identified: humanity and partnership; education and training; and health systems, policy, and management.

Conclusions:

• Empirically determined requirements for patient-centered care through the ROPCCS map.
• The ROPCCS map highlights collaborative stakeholder responsibility for advancing patient-centered care.
• ROPCCS facilitates understanding, implementation, evaluation, and measurement of patient-centered care.