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Development of a Smartphone Application to Monitor Pediatric Patient-Reported Outcomes
Jingting Wang1, Nengliang Aaron Yao2, Yanyan Liu1
1School of Nursing, Second Military Medical University, Shanghai, China.
Insights
This study developed a user-friendly smartphone app for tracking pediatric patient-reported outcomes (PROs) in chronic diseases. Usability testing confirmed the app is easy to use for children, parents, and nurses, aiding in quality of life assessments.
Area of Science:
- Digital Health
- Pediatric Health Services Research
- Patient-Reported Outcomes
Background:
- Chronic diseases in children necessitate effective methods for monitoring their health status and quality of life.
- Patient-Reported Outcomes (PROs) are crucial for comprehensive pediatric care but require accessible tracking tools.
Purpose of the Study:
- To document the development of a smartphone application designed for tracking PROs in pediatric patients with chronic conditions.
- To evaluate the usability of the developed app and its associated administration portal among pediatric patients, parents, and healthcare providers.
Main Methods:
- A multidisciplinary team collaborated on app development, incorporating iterative feedback through group discussions and multiple modification rounds.
- Usability was assessed via qualitative content analysis with ten pediatric patients, five parents, and two nurses.
- The app collects demographic data and PROs, complemented by a web-based portal for data management.
Main Results:
- All participants found the smartphone app intuitive and child-friendly.
- Nurses reported the administration portal as simple to use, with convenient data download capabilities for analysis.
- The app effectively collects demographic information and patient-reported outcomes.
Conclusions:
- The developed smartphone app and administration portal demonstrate high usability and potential for enhancing PRO collection in pediatric chronic disease management.
- This technology can improve the assessment of quality of life and symptom tracking for children with chronic illnesses.
Abstract:
This paper is to document the development process of a smartphone app to track patient-reported outcomes (PROs) of children with chronic diseases, and to share the usability study results. A multidisciplinary research team including health services researchers, pediatric nurses, and software engineers worked synergistically in development. Group discussions and several rounds of feedback and modification were conducted. Ten pediatric patients, five parents, and two nurses participated in usability study. Qualitative content analyses were employed in development and usability evaluation. The app collects demographic information and PROs. The web-based administration portal helps to manage demographic information, questionnaires, administrators, and survey-conducting organizations. All participants felt this app was easy to use and the interfaces were friendly to children. Nurses thought administration portal interfaces were simple and data was convenient to download for further analysis. The app and administration portal have potential to promote PROs in assessing quality of life and symptoms in pediatric patients.
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