Development of a Smartphone Application to Monitor Pediatric Patient-Reported Outcomes

Jingting Wang1, Nengliang Aaron Yao2, Yanyan Liu1

  • 1School of Nursing, Second Military Medical University, Shanghai, China.

Insights

This study developed a user-friendly smartphone app for tracking pediatric patient-reported outcomes (PROs) in chronic diseases. Usability testing confirmed the app is easy to use for children, parents, and nurses, aiding in quality of life assessments.

Area of Science:

  • Digital Health
  • Pediatric Health Services Research
  • Patient-Reported Outcomes

Background:

  • Chronic diseases in children necessitate effective methods for monitoring their health status and quality of life.
  • Patient-Reported Outcomes (PROs) are crucial for comprehensive pediatric care but require accessible tracking tools.

Purpose of the Study:

  • To document the development of a smartphone application designed for tracking PROs in pediatric patients with chronic conditions.
  • To evaluate the usability of the developed app and its associated administration portal among pediatric patients, parents, and healthcare providers.

Main Methods:

  • A multidisciplinary team collaborated on app development, incorporating iterative feedback through group discussions and multiple modification rounds.
  • Usability was assessed via qualitative content analysis with ten pediatric patients, five parents, and two nurses.
  • The app collects demographic data and PROs, complemented by a web-based portal for data management.

Main Results:

  • All participants found the smartphone app intuitive and child-friendly.
  • Nurses reported the administration portal as simple to use, with convenient data download capabilities for analysis.
  • The app effectively collects demographic information and patient-reported outcomes.

Conclusions:

  • The developed smartphone app and administration portal demonstrate high usability and potential for enhancing PRO collection in pediatric chronic disease management.
  • This technology can improve the assessment of quality of life and symptom tracking for children with chronic illnesses.

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