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Direct-to-Consumer Genetic Testing: Helping Patients Make Informed Choices
1Saint Louis University.
Clinical Journal of Oncology Nursing
|January 20, 2018
Summary
Direct-to-consumer genetic testing (DTCGT) offers personal health insights but carries risks like misinterpretation. Oncology nurses are vital in educating patients on DTCGT
Area of Science:
- Genetics
- Consumer Health
- Nursing
Background:
- Direct-to-consumer genetic testing (DTCGT) allows individuals to access genetic information without healthcare provider involvement.
- DTCGT provides insights into genetic predispositions for various traits and health conditions.
Purpose of the Study:
- To explore the benefits and risks associated with DTCGT.
- To highlight the role of oncology nurses in patient education and support regarding DTCGT.
Main Methods:
- Review of DTCGT processes, including sample collection and result interpretation.
- Analysis of potential benefits (personal control) and risks (misinterpretation, distress, informed consent issues).
Main Results:
- DTCGT empowers individuals with genetic information but poses challenges.
- Risks include potential misinterpretation of results, psychological distress, and inadequate informed consent.
Conclusions:
- Oncology nurses play a crucial role in guiding patients through DTCGT.
- Education, support, and advocacy by nurses are essential for patients to understand DTCGT's implications.
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