Related Experiment Video
Updated: Feb 14, 2026
07:56
Assessing the Coherence of Parents' Short Narratives Regarding their Child Using the Five-Minute Speech Sample Procedure
Published on: September 19, 2019
10.8K
Parental preferences for the first consultation for microtia.
Claire V A van Hövell Tot Westerflier1, Inge Stegeman2, Marvick S M Muradin3
1Department of Pediatric Plastic Surgery, Wilhelmina Children's Hospital, University Medical Center Utrecht, Lundlaan 6, 3584 EA Utrecht, The Netherlands.
International Journal of Pediatric Otorhinolaryngology
|February 16, 2018
Summary
Parents of children with microtia report dissatisfaction with initial information received after birth. Improved, patient-centered communication from multiple disciplines is needed to better support families.
Area of Science:
- Medical genetics
- Pediatric care
- Otolaryngology
Background:
- Microtia is a congenital condition affecting ear development.
- Effective communication is crucial for parental adjustment and care planning.
- Current information delivery post-birth may not meet parental needs.
Purpose of the Study:
- To explore parental experiences and preferences regarding initial information about microtia.
- To identify areas for improvement in communication strategies for healthcare professionals.
- To enhance parental preparedness and coping mechanisms.
Main Methods:
- A questionnaire was administered to 106 parents and caretakers of children with microtia.
- Data collected at the International Microtia and Atresia Conference in the Netherlands.
- Response rate was 82% (87 questionnaires returned).
Main Results:
- 26% of parents received no perinatal information about microtia.
- Pediatricians and otolaryngologists were primary information sources; surgeons less so.
- Most parents rated initial consultations negatively, desiring more comprehensive information.
Conclusions:
- Significant parental dissatisfaction exists regarding initial microtia information.
- There is a clear need for accurate, patient- and family-centered care.
- Multidisciplinary collaboration is essential for optimal support.
Related Concept Videos
00:55Parental Care
12.8K
Many animals exhibit parental care behavior, including feeding, grooming, and protecting young offspring. Parental care is universal in mammals and birds, which often have young that are born relatively helpless. Several species of insects and fish, as well as some amphibians, also care for their young.
12.8K
01:27Parenting Styles
717
Diana Baumrind's four parenting styles — authoritarian, authoritative, neglectful, and permissive — each influence children's socio-emotional development differently.
Authoritarian Parenting
This style is strict and controlling, with little room for open dialogue. Authoritarian parents demand obedience and often enforce rules with minimal warmth. Children raised this way may lack social skills and initiative, usually comparing themselves to others unfavorably.
Authoritative...
Authoritarian Parenting
This style is strict and controlling, with little room for open dialogue. Authoritarian parents demand obedience and often enforce rules with minimal warmth. Children raised this way may lack social skills and initiative, usually comparing themselves to others unfavorably.
Authoritative...
717
01:28Relationship with Parents: Attachment
274
Parent-child interactions lay the foundation for how we understand relationships throughout life. These interactions are not uniform across families; instead, they are shaped by a range of environmental, emotional, and behavioral factors unique to each caregiver-child dynamic. Social psychologists study these early relationships to understand how patterns formed in infancy influence social functioning and interpersonal behavior in adulthood.Attachment Theory and Early Relational ModelsJohn...
274
01:23Influence of Parents and Peers on Identity
592
Adolescence is a pivotal period of identity formation, during which individuals begin to answer questions central to their sense of self, such as "Who am I?" and "Who do I hope to become?" Both parents and peers play critical roles in guiding adolescents through this complex developmental phase.
Parental Influence on Identity Development
Parents serve as primary guides and managers in an adolescent's life, offering support instrumental in decision-making and personal growth....
Parental Influence on Identity Development
Parents serve as primary guides and managers in an adolescent's life, offering support instrumental in decision-making and personal growth....
592
01:27Parentral Nutrition: Centeral and Peripheral Parental Nutrition
1.0K
Parenteral Nutrition (PN) delivers essential nutrients directly into the bloodstream, bypassing the digestive system. It is commonly used for individuals with severe digestive disorders or conditions that prevent normal nutrient absorption.
PN can be administered through two primary routes:
1. Central Parenteral Nutrition (CPN):
CPN involves delivering a high concentration of nutrients through a large vein. This is typically achieved using a Peripherally Inserted Central Catheter (PICC) or,...
PN can be administered through two primary routes:
1. Central Parenteral Nutrition (CPN):
CPN involves delivering a high concentration of nutrients through a large vein. This is typically achieved using a Peripherally Inserted Central Catheter (PICC) or,...
1.0K
01:06Natural Selection and Mating Preferences
574
The principle of natural selection posits that organisms better adapted to their environment are more likely to survive and reproduce. This principle is closely intertwined with mating preferences, a key aspect of sexual selection, which evolutionary psychologists believe is driven by instincts to propagate one's genes. Such instincts significantly influence mating behaviors and preferences between genders.
Females, due to their biological roles in conception, pregnancy, and nursing,...
Females, due to their biological roles in conception, pregnancy, and nursing,...
574