Concern for mortality in the neonatal intensive care unit (NICU): parent and physician perspectives

Jaclyn Boulais1,2, Teresa Vente3, Mary Daley3

  • 1Division of Newborn Medicine, The Floating Hospital for Children at Tufts Medical Center, Boston, MA, USA. jboulais@tuftsmedicalcenter.org.

Insights

Parental concern for mortality (PCM) in the Neonatal Intensive Care Unit (NICU) affects nearly half of parents and is linked to infant care duration, not gestational age. Many parents desire more discussions about PCM.

Area of Science:

  • Neonatal Medicine
  • Pediatric Psychology
  • Healthcare Communication

Background:

  • Parental Concern for Mortality (PCM) is a significant factor for infants in the Neonatal Intensive Care Unit (NICU).
  • Understanding predictors and physician perspectives on PCM is crucial for improving family-centered care.

Purpose of the Study:

  • To determine the incidence and predictors of PCM in NICU parents.
  • To explore physicians' views on PCM and current practices for addressing it.

Main Methods:

  • Surveys distributed to physicians and NICU parents post-discharge.
  • Statistical analysis including chi-squared analysis and linear regression.

Main Results:

  • 48% of parents reported PCM; it was associated with infant length of stay and physician discussions, but not gestational age.
  • Physicians believed PCM correlated with lower gestational age and had fewer discussions with parents of older infants.
  • 53% of parents reported never discussing PCM with physicians.

Conclusions:

  • Parental reports indicate PCM is not solely linked to gestational age, contrary to physician belief.
  • Parents of full-term infants may experience significant PCM and desire more communication than currently provided.
Abstract

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