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Paternal care to children and adolescent with chronic disease: maternal perception
Raquel Maria Ramos1, Vanessa Medeiros da Nóbrega2, Leiliane Teixeira Bento Fernandes1
1Universidade Federal da Paraíba (UFPB), Centro de Ciências da Saúde, Departamento de Enfermagem em Saúde Coletiva. João Pessoa, Paraíba, Brasil.
Insights
Maternal perceptions reveal fathers actively participate in caring for children with chronic diseases, though their involvement varies. Increased paternal engagement is crucial for better child health outcomes.
Area of Science:
- Pediatric Nursing
- Family Health
- Chronic Disease Management
Background:
- Paternal involvement in childcare is increasingly recognized as vital.
- Understanding maternal perceptions of paternal care is key for supporting families with chronically ill children.
Purpose of the Study:
- To analyze maternal perceptions of paternal care for children with chronic diseases.
- To explore how paternal care is practically implemented within the family routine.
Main Methods:
- Qualitative, exploratory-descriptive study.
- Conducted with 10 mothers of children with chronic diseases (diagnosis > 6 months).
- Data collected via semi-structured interviews and analyzed thematically.
Main Results:
- Fathers participated in routine care, medication management, leisure activities, and household chores.
- Paternal role engagement varied based on time availability and maternal autonomy.
- Parental distance in separated couples negatively impacted the child's health.
Conclusions:
- Involving fathers in the care of chronically ill children is essential.
- There is a need to enhance and promote greater paternal involvement in pediatric chronic disease management.
Objective:
To analyze the maternal perception about the paternal care and to understand how this care Is made effective In practical actions in the care of the child/adolescent with chronic disease in the family routine.
Methods:
Exploratory-descriptive, qualitative study, carried out at the pediatric outpatient clinic of a public hospital in the state of Paraíba, between November/2013 and April/2014, with 10 mothers whose children had more than six months of diagnosis. Semi-structured interview subsidized the data collection, which was submitted to thematic analysis.
Results:
Parents participated in activities such as routine care of the child, medication management, leisure, binomial support and household chores. They took on different roles in the care depending on the availability of time and the maternal freedom given for their participation. Among the separated couples, the distance between parents in the care reflected on the child's health.
Conclusion:
It is important to involve fathers in the care of the child with chronic diseases. However, there is a need for a greater involvement of fathers in the performance of this care.
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