Paternal care to children and adolescent with chronic disease: maternal perception

Raquel Maria Ramos1, Vanessa Medeiros da Nóbrega2, Leiliane Teixeira Bento Fernandes1

  • 1Universidade Federal da Paraíba (UFPB), Centro de Ciências da Saúde, Departamento de Enfermagem em Saúde Coletiva. João Pessoa, Paraíba, Brasil.

Insights

Maternal perceptions reveal fathers actively participate in caring for children with chronic diseases, though their involvement varies. Increased paternal engagement is crucial for better child health outcomes.

Area of Science:

  • Pediatric Nursing
  • Family Health
  • Chronic Disease Management

Background:

  • Paternal involvement in childcare is increasingly recognized as vital.
  • Understanding maternal perceptions of paternal care is key for supporting families with chronically ill children.

Purpose of the Study:

  • To analyze maternal perceptions of paternal care for children with chronic diseases.
  • To explore how paternal care is practically implemented within the family routine.

Main Methods:

  • Qualitative, exploratory-descriptive study.
  • Conducted with 10 mothers of children with chronic diseases (diagnosis > 6 months).
  • Data collected via semi-structured interviews and analyzed thematically.

Main Results:

  • Fathers participated in routine care, medication management, leisure activities, and household chores.
  • Paternal role engagement varied based on time availability and maternal autonomy.
  • Parental distance in separated couples negatively impacted the child's health.

Conclusions:

  • Involving fathers in the care of chronically ill children is essential.
  • There is a need to enhance and promote greater paternal involvement in pediatric chronic disease management.
Abstract

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