Related Experiment Video

Updated: Feb 13, 2026

Whole-body PET/MRI of Pediatric Patients: The Details That Matter
10:02

Whole-body PET/MRI of Pediatric Patients: The Details That Matter

Published on: December 19, 2017

15.4K

The knowledge and expectations about IBD - difference between pediatric patients and their parents

I Hojsak1,2,3, Z Mišak1, T Trbojević1

  • 1Referral Center for Pediatric Gastroenterology and Nutrition, Children's Hospital Zagreb, Zagreb, Croatia.

Acta Gastro-Enterologica Belgica
|March 22, 2018
PubMed

Insights

Knowledge about pediatric inflammatory bowel disease (IBD) differs significantly between children and their parents. Parents actively seek information online and desire patient organizations, while children prefer direct physician interaction.

Area of Science:

  • Pediatric Gastroenterology
  • Patient Education
  • Chronic Disease Management

Background:

  • Inflammatory bowel disease (IBD) significantly impacts children and adolescents.
  • Understanding patient and parent knowledge is crucial for effective care.
  • Discrepancies in disease perception can affect treatment adherence and outcomes.

Purpose of the Study:

  • To compare knowledge levels of pediatric IBD patients and their parents regarding the disease.
  • To identify primary sources of disease-related information for both groups.
  • To gather insights for improving patient and family support and education.

Main Methods:

  • A prospective survey was conducted.
  • Participants included children aged 12 years and older with IBD and their parents.
  • Ambulatory patients from a tertiary medical center were enrolled.

Main Results:

  • Significant differences were observed in information-seeking behaviors, with parents more frequently using the internet (73.7%) than children (44.7%).
  • Parents expressed a higher desire for participation in patient organizations (97.4%) compared to children (55.3%).
  • Parents (78.9%) strongly encouraged physician-child alone time, contrasting with children's low preference (2.6%).

Conclusions:

  • There are notable disparities in understanding and preferences between pediatric IBD patients and their parents.
  • These differences must be considered when developing clinical strategies and educational interventions.
  • Tailored approaches are needed to address the unique needs of both children with IBD and their families.
Abstract

Keywords:
inflammatory bowel diseaseinternet searchpatients' organization

More Related Videos

Guidelines for Elective Pediatric Fiberoptic Intubation11:19

Guidelines for Elective Pediatric Fiberoptic Intubation

Published on: January 17, 2011

18.6K
Evidence-based Knowledge Synthesis and Hypothesis Validation: Navigating Biomedical Knowledge Bases via Explainable AI and Agentic Systems05:47

Evidence-based Knowledge Synthesis and Hypothesis Validation: Navigating Biomedical Knowledge Bases via Explainable AI and Agentic Systems

Published on: June 13, 2025

1.6K

Related Concept Videos

Pharmacokinetics in Pediatric Patients: Drug Excretion01:26

Pharmacokinetics in Pediatric Patients: Drug Excretion

In pediatric medicine, understanding the renal function and drug elimination nuances is crucial for administering safe and effective treatments. Newborns, in particular, display markedly slower renal functions than adults, profoundly affecting how drugs are cleared from their bodies. This slower drug clearance requires clinicians to extend the dosing intervals for many medications to prevent drug accumulation and toxicity while ensuring therapeutic efficacy.One key area where these adjustments...
277
Expected Value01:15

Expected Value

The expected value is known as the "long-term" average or mean. This means that over the long term of experimenting over and over, you would expect this average. The expected average is represented by the symbol μ. It is calculated as follows:
7.8K
Pharmacokinetics in Pediatric Patients: Drug Distribution01:17

Pharmacokinetics in Pediatric Patients: Drug Distribution

Drug distribution in the pediatric population exhibits unique challenges and considerations due to the physiological differences between children, particularly neonates and infants, and adults. A crucial aspect of pediatric pharmacology is understanding how these differences impact the pharmacokinetics of various drugs, necessitating age-specific dosing strategies to ensure efficacy and safety.Neonates and infants have a higher total body water content, ~75%–90% of their body weight,...
334
Pharmacokinetics in Pediatric Patients: Drug Metabolism01:24

Pharmacokinetics in Pediatric Patients: Drug Metabolism

In pediatric care, understanding the nuances of hepatic drug metabolism is crucial, as it significantly differs from that of adults. This divergence is primarily due to the developmental stage of drug-metabolizing enzymes, which affects how medications are processed in the body. In neonates, for instance, the activity of Phase I enzymes—critical for the initial breakdown of drugs—is markedly reduced, functioning at just 20–40% of the levels seen in adults. This reduction poses...
246
Pharmacokinetics in Pediatric Patients: Overview and Drug Absorption01:23

Pharmacokinetics in Pediatric Patients: Overview and Drug Absorption

Understanding the physiological differences in the pediatric population is crucial for effective pharmacotherapy. Neonates, infants, and children exhibit significant variations in gastric pH, gastric emptying time, intestinal transit time, and biliary function. These variations profoundly affect oral drug absorption, necessitating a nuanced approach to pediatric dosing.Neonates present with a unique physiological profile, having a gastric pH greater than 4 and faster and more irregular gastric...
310
Parental Care00:55

Parental Care

Many animals exhibit parental care behavior, including feeding, grooming, and protecting young offspring. Parental care is universal in mammals and birds, which often have young that are born relatively helpless. Several species of insects and fish, as well as some amphibians, also care for their young.
12.8K