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Epidemiology of Cerebral Palsy in Northeastern Switzerland
Ruben Forni1, Violeta Stojicevic, Careen van Son
1San Giovanni Hospital (Mr Forni), Bellinzona, Switzerland; Saint Josef-Foundation (Ms Stojicevic), Bremgarten, Switzerland; Children's Hospital of Eastern Switzerland (Ms van Son and Dr Kuenzle), Saint Gallen, Switzerland; Department of Pediatrics (Dr Lava), University Children's Hospital of Bern, Inselspital, Bern, Switzerland; Rehabilitation Research Laboratory 2rLab (Mr Beretta-Piccoli), Department of Business Economics, Health and Social Care (Mr Forni), University of Applied Sciences and Arts of Southern Switzerland, Manno, Switzerland.
Insights
Cerebral palsy (CP) prevalence in Switzerland was 0.19%, with most cases being spastic CP. This study shows that creating a CP registry is feasible and useful for future research.
Area of Science:
- Pediatric neurology
- Public health
- Epidemiology
Background:
- Cerebral palsy (CP) is the most common childhood motor disability.
- Limited data exists on CP prevalence and associated factors in Switzerland.
Purpose of the Study:
- To determine the prevalence of cerebral palsy in a Swiss canton.
- To assess the feasibility of establishing a CP registry in Switzerland.
Main Methods:
- Retrospective review of medical records for children diagnosed with CP.
- Inclusion criteria: born between 1995 and 2009 in the canton of Saint Gallen.
Main Results:
- The study cohort included 140 patients.
- CP prevalence was found to be 0.19%.
- Spastic CP accounted for 85% of all CP cases.
Conclusions:
- CP prevalence in this Swiss canton is comparable to European data.
- The pilot study confirmed the feasibility and utility of a CP registry.
- Establishing a registry can aid in understanding and managing CP.
Purpose:
Cerebral palsy (CP) is the most common motor disability of childhood. Less is known about its prevalence and associated factors in Switzerland, so we aimed to fill this knowledge gap in one Swiss canton, evaluating the feasibility to build up a CP registry.
Methods:
A retrospective review of medical records was undertaken. Children born during 1995 and 2009 in the canton of Saint Gallen diagnosed with CP were eligible for inclusion.
Results:
A total of 140 patients formed the study cohort. The prevalence of CP was 0.19%, with 85% of children affected by spastic CP.
Conclusions:
The results of the present study were comparable with data of the Surveillance of Cerebral Palsy in Europe network. Moreover, this pilot study demonstrated the feasibility and usefulness of creating a registry of children affected by CP.
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