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Adding a Parent to the Brain Tumor Team: Evaluating a Peer Support Intervention for Parents of Children With Brain

Mary Baron Nelson1,2, Kathy Riley3, Kimberly Arellano4

  • 11 Keck School of Medicine at USC, Los Angeles, CA, USA.

Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses
|March 29, 2018
PubMed

Insights

Veteran Parent support for childhood brain tumor families showed benefits in handling difficult decisions and emotional challenges, highlighting the value of peer support. This program offers crucial emotional and instrumental aid.

Area of Science:

  • Pediatric Oncology
  • Psychosocial Support
  • Family Medicine

Background:

  • Childhood brain tumors pose significant challenges to families.
  • The Pediatric Brain Tumor Foundation offers a Veteran Parent program for psychosocial support.
  • Evaluating the effectiveness of this peer support intervention is crucial.

Purpose of the Study:

  • To assess the impact of the Veteran Parent program on parental resilience and family impact.
  • To compare outcomes between parents receiving Veteran Parent support and those who did not.
  • To explore stakeholder experiences with the peer support intervention.

Main Methods:

  • Mixed-methods, cross-sectional study design.
  • Utilized validated tools: PedsQL Family Impact module and Connor-Davidson Resilience Scale (CD-RISC-25).
  • Qualitative data collected via focus groups and analyzed using social support theory.

Main Results:

  • No significant differences in overall parental resilience or family impact scores.
  • Intervention group showed improved scores in handling difficult decisions and painful emotions.
  • Qualitative themes included informational/emotional support, peer relatedness, changed outlook, and empowerment.

Conclusions:

  • Peer parent support positively impacts families of children with brain tumors.
  • The program effectively provides emotional and instrumental support.
  • Further integration of peer support in pediatric oncology care is warranted.

Keywords:
mixed methodsneuro-oncologyparentssupport

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