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Common data elements for epilepsy mobile health systems.

Daniel M Goldenholz1,2, Robert Moss3, David A Jost4

  • 1Division of Epilepsy, Beth Israel Deaconess Medical Center, Boston, MA, USA.

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|April 1, 2018
PubMed
Summary
This summary is machine-generated.

Industry-wide standards for mobile health (mHealth) epilepsy data are now available. This consensus on common data elements (CDEs) will improve data interoperability and enhance tools for people with epilepsy.

Keywords:
common data elementsdevicesepilepsymHealthseizure diarystandards

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Area of Science:

  • Neurology
  • Digital Health
  • Biomedical Informatics

Background:

  • Mobile health (mHealth) applications for epilepsy lack standardized common data elements (CDEs).
  • This absence hinders data interoperability and comparability across diverse digital health services for epilepsy management.
  • The rapid growth of mHealth necessitates standardized data for effective epilepsy care.

Framework:

  • A consensus statement for epilepsy mHealth CDEs was developed.
  • Stakeholders from industry, academia, and patient advocacy collaborated to define these essential data elements.
  • The framework aims to facilitate seamless communication between different mHealth systems.

Implementation:

  • The presented consensus statement outlines a minimal common information denominator for epilepsy mHealth.
  • These CDEs are designed to be applicable across various epilepsy-related applications and devices.
  • The implementation focuses on establishing industry-wide standards for data collection.

Implications:

  • Adoption of these CDEs will promote innovation and accelerate scientific discovery in epilepsy research.
  • Standardized data will enhance clinical utility and improve the effectiveness of mHealth tools for epilepsy.
  • Ultimately, this will provide people with epilepsy greater flexibility and more powerful tools for managing their condition.