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The Serbian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
Gordana Susic1, Jelena Vojinovic2,3, Gordana Vijatov-Djuric4,5
1Division of Pediatric Rheumatology, Institute of Rheumatology, Belgrade, Serbia.
Insights
The Serbian version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is validated for assessing juvenile idiopathic arthritis (JIA) in children. This parent/patient-reported outcome measure is reliable for clinical practice and research.
Area of Science:
- Pediatric Rheumatology
- Clinical Assessment Tools
- Health Outcomes Research
Background:
- Juvenile idiopathic arthritis (JIA) requires comprehensive assessment tools.
- The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a parent/patient-reported outcome measure.
- Cross-cultural adaptation and validation are crucial for global applicability.
Purpose of the Study:
- To cross-culturally adapt and validate the Serbian parent and patient versions of the JAMAR.
- To assess the psychometric properties of the JAMAR in a Serbian population.
- To establish the JAMAR as a reliable tool for JIA assessment in Serbia.
Main Methods:
- Cross-cultural adaptation and validation of the JAMAR in Serbian.
- Testing reading comprehension in 10 JIA patients/parents.
- Collecting demographic, clinical, and JAMAR data from 248 JIA patients and 100 healthy children across three centers.
- Statistical validation including psychometric analyses (Likert assumptions, floor/ceiling effects, internal consistency, reliability, validity).
Main Results:
- The Serbian JAMAR demonstrated good psychometric performance.
- All JAMAR components effectively discriminated between JIA patients and healthy children.
- The tool showed good internal consistency, reliability, and construct validity.
Conclusions:
- The Serbian version of the JAMAR is a valid and reliable tool for assessing children with JIA.
- The JAMAR is suitable for both routine clinical practice and clinical research in Serbia.
- This validated tool aids in comprehensive disease status assessment for Serbian pediatric arthritis patients.
Abstract:
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Serbian language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, test-retest reliability, and construct validity (convergent and discriminant validity). A total of 248 JIA patients (5.2% systemic, 44.3% oligoarticular, 23.8% RF-negative polyarthritis, 26.7% other categories) and 100 healthy children were enrolled in three centres. The JAMAR components discriminated healthy subjects from JIA patients. All JAMAR components revealed good psychometric performances. In conclusion, the Serbian version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
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