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The Slovene version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

Natasa Toplak1, Tadej Avcin2, Maja Camernik1

  • 1Department of Allergology, Rheumatology and Clinical Immunology, University Children's Hospital, University Medical Center Ljubljana, Bohoriceva 20, 1525, Ljubljana, Slovenia.

Rheumatology International
|April 12, 2018
PubMed

Insights

The Slovene version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is validated for assessing juvenile idiopathic arthritis (JIA) in children. This parent/patient-reported outcome measure is reliable for clinical practice and research.

Area of Science:

  • Pediatrics
  • Rheumatology
  • Health Outcomes Research

Background:

  • Juvenile idiopathic arthritis (JIA) requires comprehensive assessment tools.
  • The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a novel parent/patient-reported outcome measure.
  • Cross-cultural adaptation and validation are crucial for global applicability.

Purpose of the Study:

  • To translate and validate the parent and patient versions of the JAMAR into Slovene.
  • To assess the psychometric properties of the Slovene JAMAR in children with JIA.
  • To evaluate the JAMAR's utility in clinical practice and research.

Main Methods:

  • Cross-cultural adaptation and translation of the JAMAR into Slovene.
  • Pilot testing for reading comprehension in 10 JIA patients/parents.
  • Validation study involving 100 JIA patients and 120 healthy children.
  • Statistical analysis of psychometric properties including reliability and validity.

Main Results:

  • The Slovene JAMAR demonstrated good psychometric performance across all components.
  • The JAMAR effectively discriminated between JIA patients and healthy controls, with minor exceptions.
  • Internal consistency, reliability, and validity were confirmed for the Slovene version.

Conclusions:

  • The Slovene JAMAR is a valid and reliable tool for assessing JIA in children.
  • The validated instrument is suitable for both clinical practice and research settings.
  • This adaptation enhances the assessment capabilities for pediatric rheumatology in Slovenia.

Keywords:
Disease statusFunctional abilityHealth-related quality of lifeJAMARJuvenile idiopathic arthritis

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