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The Portuguese version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

Jose Antonio Melo-Gomes1, Filipa Oliveira-Ramos2,3, Alessandro Consolaro4,5

  • 1Consulta de Reumatologia Infantil do Adolescente e do Adulto jovem, Instituto Português de Reumatologia, Lisbon, Portugal. josemelogomes52@gmail.com.

Rheumatology International
|April 12, 2018
PubMed

Insights

The Portuguese Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a validated tool for assessing juvenile idiopathic arthritis (JIA) in children. This parent/patient-reported outcome measure demonstrates good psychometric performance for clinical practice and research.

Area of Science:

  • Pediatric Rheumatology
  • Clinical Assessment Tools
  • Health Outcomes Research

Background:

  • Juvenile idiopathic arthritis (JIA) requires comprehensive assessment tools.
  • The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a novel parent/patient-reported outcome measure.
  • Cross-cultural adaptation and validation are crucial for global applicability.

Purpose of the Study:

  • To cross-culturally adapt and validate the parent and patient versions of the JAMAR into Portuguese.
  • To assess the psychometric properties of the Portuguese JAMAR in children with JIA.
  • To determine the suitability of the Portuguese JAMAR for clinical practice and research.

Main Methods:

  • Cross-cultural adaptation including reading comprehension testing in 10 JIA parent/patient dyads.
  • Validation study involving demographic, clinical data, and JAMAR administration in 80 JIA patients and 30 healthy children.
  • Statistical analysis of psychometric properties including Likert assumptions, floor/ceiling effects, internal consistency (Cronbach's alpha), and construct validity.

Main Results:

  • The Portuguese JAMAR demonstrated good psychometric performance across all components.
  • The JAMAR effectively discriminated between healthy children and those with JIA.
  • No significant differences were observed in school-related items between healthy and JIA children.

Conclusions:

  • The Portuguese version of the JAMAR is a valid and reliable outcome measure for assessing children with JIA.
  • The JAMAR is suitable for use in routine clinical practice and clinical research involving Portuguese-speaking populations.
  • This validated tool enhances the multidimensional assessment of disease status in pediatric JIA patients.

Keywords:
Disease statusFunctional abilityHealth-related quality of lifeJAMARJuvenile idiopathic arthritis

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