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The Chilean Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)

Ximena Norambuena1, Alessandro Consolaro2,3, Francesca Bovis2

  • 1Hospital Dr. Exequiel González Cortés, Servicio de Pediatria, Unidad de Inmuno-Reumatologia Pediatrica, Jose Miguel Carrera N° 3300, San Miguel, Santiago, Chile. ximenorambuena@hotmail.com.

Rheumatology International
|April 12, 2018
PubMed

Insights

The Chilean Spanish Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is validated for assessing juvenile idiopathic arthritis (JIA) in children. This parent/patient-reported outcome measure shows good psychometric performance for clinical practice and research.

Area of Science:

  • Pediatrics
  • Rheumatology
  • Health Outcomes

Background:

  • Juvenile idiopathic arthritis (JIA) requires reliable assessment tools.
  • The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a parent/patient-reported outcome measure for JIA.
  • Cross-cultural adaptation and validation are crucial for global applicability.

Purpose of the Study:

  • To translate and validate the JAMAR into Chilean Spanish.
  • To assess the psychometric properties of the Chilean Spanish JAMAR version.
  • To determine its suitability for clinical practice and research in Chile.

Main Methods:

  • Cross-cultural adaptation and validation of the parent and patient versions of the JAMAR.
  • Reading comprehension testing in ten JIA patients/parents.
  • Statistical validation including psychometric analyses (Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, correlations, construct validity).
  • Data collection from 49 JIA patients and 70 healthy children.

Main Results:

  • The Chilean Spanish JAMAR demonstrated good reading comprehension.
  • The JAMAR components effectively discriminated between JIA patients and healthy children.
  • All JAMAR components exhibited favorable psychometric performance, including good internal consistency and construct validity.

Conclusions:

  • The Chilean Spanish version of the JAMAR is a valid and reliable tool for assessing children with JIA.
  • The JAMAR is suitable for routine clinical practice and clinical research involving Chilean pediatric populations.
  • This validated tool supports improved disease status assessment in JIA patients in Chile.

Keywords:
Disease statusFunctional abilityHealth related quality of lifeJAMARJuvenile idiopathic arthritis

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