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The Colombian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)
Clara Malagon1, Angela Catalina Mosquera Pongutà2, Jaime De Inocencio3,4
1Hospital Universitario Simon Bolivar, Clínica Infantil Colsubsidio, Facultad De Medicina, Post Grado Reumatologia Pediatrica, Universidad El Bosque, Carrera 7, Bogota, 163-36, Colombia. claramalagonmd@gmail.com.
Insights
The Colombian Spanish version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is validated for assessing juvenile idiopathic arthritis (JIA) in children. This parent/patient-reported outcome measure demonstrates good psychometric performance for clinical research and practice.
Area of Science:
- Pediatrics
- Rheumatology
- Health Outcomes
Background:
- Juvenile idiopathic arthritis (JIA) requires reliable assessment tools.
- The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a parent/patient-reported outcome measure for JIA.
- Cross-cultural adaptation and validation are crucial for global applicability.
Purpose of the Study:
- To adapt and validate the JAMAR for Colombian Spanish-speaking populations.
- To assess the psychometric properties of the JAMAR in children with JIA in Colombia.
- To establish the JAMAR as a reliable tool for JIA assessment in this region.
Main Methods:
- Cross-cultural adaptation and translation of the JAMAR into Colombian Spanish.
- Testing reading comprehension with JIA patients and parents.
- Statistical validation including psychometric analyses (Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, correlations, construct validity).
- Data collection from JIA patients and healthy controls.
Main Results:
- The JAMAR demonstrated good psychometric performance across all components.
- The Colombian Spanish version showed reliability and validity for JIA assessment.
- Reading comprehension was adequate among participants.
Conclusions:
- The Colombian Spanish JAMAR is a valid and reliable outcome measure for children with JIA.
- The tool is suitable for both clinical practice and research in the Colombian context.
- This facilitates improved assessment and management of JIA in Spanish-speaking populations.
Abstract:
The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient-reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the Colombian Spanish language. The reading comprehension of the questionnaire was tested in ten JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach's alpha, interscale correlations, and construct validity (convergent and discriminant validity). A total of 22 JIA patients (9.1% systemic, 27.3% RF-negative polyarthritis, 36.4% enthesitis-related arthritis, 27.2% other categories) were enrolled in the paediatric centre of Bogota. All JAMAR components revealed good psychometric performances. In conclusion, the Colombian Spanish version of the JAMAR is a valid tool for the assessment of children with JIA and is suitable for use both in routine clinical practice and clinical research.
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