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The development of a consensus-based nutritional pathway for infants with CHD before surgery using a modified Delphi
Luise V Marino1, Mark J Johnson2, Nigel J Hall2
11Department of Dietetics/SLT,University Hospital Southampton NHS Foundation Trust,Southampton,UK.
Insights
A new nutritional pathway was developed for infants with congenital heart disease (CHD) awaiting surgery. This structured approach aims to improve nutritional care and address growth failure in this vulnerable population.
Area of Science:
- Pediatric Cardiology
- Nutritional Science
- Clinical Pathway Development
Background:
- Infants with congenital heart disease (CHD) often experience growth failure before surgical intervention.
- Existing nutritional care for these infants may lack a structured, evidence-based approach.
Purpose of the Study:
- To develop a structured nutritional pathway for infants with CHD awaiting surgery.
- To provide standardized nutritional support guidelines for this patient group.
Main Methods:
- A modified Delphi process was employed for guideline development.
- Involved stakeholder meetings, anonymous online surveys (two rounds), a regional conference, and a final expert meeting.
Main Results:
- Paediatric Dietitians from all 11 UK pediatric cardiology centers participated.
- High levels of agreement were achieved: 76% after round 1 and 96% after round 2.
- Consensus was reached on all statements after final expert group discussions.
Conclusions:
- Nutrition guidelines were successfully developed for infants with CHD awaiting surgery.
- The pathway integrates best available evidence and expert opinion for nutritional support.
- The modified Delphi process ensured a robust and consensus-driven guideline.
Abstract:
IntroductionDespite improvements in the medical and surgical management of infants with CHD, growth failure before surgery in many infants continues to be a significant concern. A nutritional pathway was developed, the aim of which was to provide a structured approach to nutritional care for infants with CHD awaiting surgery.Materials and methodsThe modified Delphi process was development of a nutritional pathway; initial stakeholder meeting to finalise draft guidelines and develop questions; round 1 anonymous online survey; round 2 online survey; regional cardiac conference and pathway revision; and final expert meeting and pathway finalisation.
Results:
Paediatric Dietitians from all 11 of the paediatric cardiology surgical centres in the United Kingdom contributed to the guideline development. In all, 33% of participants had 9 or more years of experience working with infants with CHD. By the end of rounds 1 and 2, 76 and 96% of participants, respectively, were in agreement with the statements. Three statements where consensus was not achieved by the end of round 2 were discussed and agreed at the final expert group meeting.
Conclusions:
Nutrition guidelines were developed for infants with CHD awaiting surgery, using a modified Delphi process, incorporating the best available evidence and expert opinion with regard to nutritional support in this group.
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