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Updated: Feb 11, 2026
08:39
Culture of Bladder Cancer Organoids as Precision Medicine Tools
Published on: December 28, 2021
5.5K
Patient-centered prioritization of bladder cancer research
Angela B Smith1,2, Stephanie Chisolm3, Allison Deal2
1Department of Urology, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina.
Cancer
|May 5, 2018
Summary
This study established a sustainable patient engagement network for oncology research prioritization. The Bladder Cancer Advocacy Network Patient Survey Network successfully identified key research questions, influencing funding priorities.
Area of Science:
- Oncology
- Patient-Centered Research
- Health Engagement
Background:
- Meaningful patient and caregiver involvement is crucial for patient-centered research.
- Oncology research requires effective patient engagement strategies for prioritization.
Purpose of the Study:
- To develop a sustainable process for patient and caregiver engagement in oncology research prioritization.
- To establish a patient engagement network for research prioritization in bladder cancer.
Main Methods:
- Created the Bladder Cancer Advocacy Network Patient Survey Network (BCAN PSN) from 2014-2016.
- Utilized an online community, social media, and print ads for recruitment.
- Employed a modified Delphi process and multidisciplinary working groups for question prioritization.
Main Results:
- Survey responses increased from 354 to 1034 participants over two years.
- Prioritized research questions covered non-muscle-invasive, invasive, and metastatic bladder cancer.
- A highly ranked NMIBC research question became a priority area for funding.
Conclusions:
- Patient engagement is vital for identifying high-priority oncology research questions.
- The BCAN PSN demonstrates a successful model for sustained patient engagement in bladder cancer research.
- This engagement infrastructure supports future research phases, including design, conduct, and dissemination.
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