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Methodological considerations in using patient reported measures in dialysis clinics.
John D Peipert1,2, Ron D Hays3
11Division of Nephrology, David Geffen School of Medicine, University of California, Los Angeles, 1018 Westwood Blvd, Suite 1223, Los Angeles, CA 90024 USA.
Journal of Patient-Reported Outcomes
|May 15, 2018
Summary
Patient-reported measures (PRMs) are vital in dialysis care but face challenges. This study recommends refining existing PRMs, adding new measures, and improving administration and support to enhance their use in US dialysis centers.
Area of Science:
- Nephrology
- Health Services Research
- Patient-Reported Outcomes
Background:
- Patient-reported measures (PRMs) are extensively used in dialysis care for quality improvement and performance monitoring.
- Despite their widespread use, methodological challenges persist in the application of PRMs within dialysis centers.
Purpose of the Study:
- To identify key methodological concerns regarding the use of PRMs in US dialysis centers.
- To provide recommendations for improving the selection, administration, and support of PRMs in dialysis care.
Main Methods:
- The study identifies methodological challenges in PRM use within US dialysis centers.
- Recommendations are proposed focusing on PRM selection, mode of administration, and support for PRM use.
Main Results:
- Recommendations include continuing and modifying the KDQOL™-36 and ICH-CAHPS survey®.
- Adopting a new PRM on informing patients about dialysis and transplant options is suggested.
- Evaluating electronic vs. paper PRM equivalence, exploring reimbursement, and enhancing provider training are also recommended.
Conclusions:
- Implementing these recommendations can enhance PRM utilization in dialysis centers.
- This will aid decision-makers, clinicians, and researchers in improving dialysis care through better PRM integration.
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