Related Experiment Video
Updated: Feb 10, 2026

Forward Genetic Approaches in Chlamydia trachomatis
Published on: October 23, 2013
Direct-to-consumer genetic testing: where and how does genetic counseling fit?
Anna Middleton1, Álvaro Mendes2, Caroline M Benjamin3,4
1Society & Ethics Research Group, Connecting Science, Wellcome, Genome Campus, Cambridge, UK.
Abstract:
Direct-to-consumer genetic testing for disease ranges from well-validated diagnostic and predictive tests to 'research' results conferring increased risks. While being targeted at public curious about their health, they are also marketed for use in reproductive decision-making or management of disease. By virtue of being 'direct-to-consumer' much of this testing bypasses traditional healthcare systems. We argue that direct-to-consumer genetic testing companies should make genetic counseling available, pre- as well as post-test. While we do not advocate that mandatory genetic counseling should gate-keep access to direct-to-consumer genetic testing, if the testing process has the potential to cause psychological distress, then companies have a responsibility to provide support and should not rely on traditional healthcare systems to pick up the pieces. A video abstract is available for this article via this link .
Related Concept Videos
Genetics of Speciation
What is Population Genetics?
What is Genetic Engineering?
Animal Mitochondrial Genetics
Types of Genetic Transfer Between Organisms
Mutation, Gene Flow, and Genetic Drift

