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Closing Knowledge Gaps to Optimize Patient Outcomes and Advance Precision Medicine
Kathy Giusti, Anne Quinn Young, Kerri Lehrhaupt1
1Kantar Health, New York, NY.
Cancer Journal (Sudbury, Mass.)
|May 26, 2018
Summary
Patient engagement in cancer care is crucial for precision medicine. Gaps in awareness and action hinder patients from making optimal treatment decisions, impacting outcomes and research.
Area of Science:
- Oncology
- Precision Medicine
- Patient Engagement
Background:
- Precision medicine aims to tailor treatments to individual patients, requiring informed decision-making.
- Patient engagement in cancer care is essential for achieving optimal outcomes.
- Previous studies indicate better outcomes for patients making informed treatment choices, such as selecting high-volume centers.
Purpose of the Study:
- To assess patient awareness of and barriers to key decision points in cancer care.
- To identify knowledge and action gaps across different cancer types.
- To inform strategies for improving patient engagement in precision medicine.
Main Methods:
- An online survey was administered to patients with multiple myeloma, pancreatic, lung, prostate, and metastatic breast cancer.
- Respondents were recruited via email or social media through 5 participating foundations.
- Descriptive analyses and comparative statistics were used to analyze survey data.
Main Results:
- Consistent gaps in knowledge and actions were found across all evaluated cancer types.
- Patients struggled with identifying appropriate medical teams and centers.
- Deficiencies were noted in diagnostic testing, treatment selection (including clinical trials), and data sharing.
Conclusions:
- Improving patient awareness and behavior regarding key decision points is vital for enhancing cancer care.
- Addressing these gaps will facilitate better patient outcomes and advance precision medicine initiatives.
- Targeted interventions are needed to empower patients in their cancer journey.
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