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Structurating Expanded Genetic Carrier Screening: A Longitudinal Analysis of Online News Coverage
Heather E Canary1, Yvonne K Clark2, Avery Holton2
1a School of Communication, San Diego State University, CA, USA.
Journal of Health Communication
|May 26, 2018
Summary
Expanded carrier screening (ECS) is a genetic test for inherited disorders. Media coverage from 2010-2015 framed ECS as an innovation, business opportunity, and family planning tool.
Area of Science:
- Medical Genetics
- Health Technology Assessment
- Bioethics
Background:
- Expanded carrier screening (ECS) assesses the risk of healthy individuals passing genetic disorders to offspring.
- ECS tests for hundreds of genetic disorders, unlike traditional single-disorder screening.
- Public perception and media portrayal of ECS are not well understood.
Purpose of the Study:
- To analyze how expanded carrier screening (ECS) was presented in online media from 2010 to 2015.
- To identify key themes and changes in media coverage of ECS over time.
- To understand the public framing of ECS as a health technology.
Main Methods:
- Qualitative content analysis of online news and information.
- Study period: 2010-2015, encompassing the initial public availability of ECS.
- Analysis guided by structuration theory.
Main Results:
- Major coverage themes remained consistent throughout the study period.
- ECS was consistently framed as a health technology innovation.
- Media also presented ECS as a business opportunity and a family planning tool.
Conclusions:
- Online media framed expanded carrier screening (ECS) through consistent themes of innovation, business, and family planning between 2010 and 2015.
- Findings have implications for future research on health technologies, health journalism, and clinical practice.
- Understanding media framing is crucial for informed public perception and clinical discussions regarding ECS.
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