Pediatric Palliative Care in Iran: Applying Regionalization of Health Care Systems

Leila Khanali Mojen1, Maryam Rassouli, Peyman Eshghi

  • 1Department of Pediatric Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran.

Insights

This study explored stakeholder perceptions to develop a conceptual framework for pediatric palliative care in Iran. Findings emphasize comprehensive care and social justice for children with cancer.

Area of Science:

  • Oncology
  • Palliative Care
  • Health Systems Research

Background:

  • Palliative care integration is a priority within Iran's health system.
  • Essential to explore stakeholder perspectives for effective framework development.
  • Focus on pediatric cancer care within the Iranian health system context.

Purpose of the Study:

  • To explore stakeholders' perceptions regarding palliative care services for children with cancer in Iran.
  • To develop a conceptual framework for integrating these services into the national health system.

Main Methods:

  • Qualitative study employing in-depth, semi-structured interviews.
  • 29 participants: palliative care specialists, policymakers, healthcare providers, and parents of children with cancer.
  • Data analysis using MAXQDA10 software until data saturation.

Main Results:

  • Identified 'classes of palliative care services' as the main theme.
  • Key categories: 'comprehensive care' (family support, familiar environment, stability) and 'social justice' (access, financial relief, quality care).
  • Framework based on service levels proposed for integration.

Conclusions:

  • The study provides a framework for integrating pediatric palliative care into the Iranian health system.
  • Findings highlight the importance of comprehensive and socially just care delivery.
  • Framework development is crucial for advancing palliative care services for children with cancer.

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