Pediatric Palliative Care in Iran: Applying Regionalization of Health Care Systems
Leila Khanali Mojen1, Maryam Rassouli, Peyman Eshghi
1Department of Pediatric Nursing, School of Nursing and Midwifery, Shahid Beheshti University of Medical Sciences, Tehran, Iran.
Insights
This study explored stakeholder perceptions to develop a conceptual framework for pediatric palliative care in Iran. Findings emphasize comprehensive care and social justice for children with cancer.
Area of Science:
- Oncology
- Palliative Care
- Health Systems Research
Background:
- Palliative care integration is a priority within Iran's health system.
- Essential to explore stakeholder perspectives for effective framework development.
- Focus on pediatric cancer care within the Iranian health system context.
Purpose of the Study:
- To explore stakeholders' perceptions regarding palliative care services for children with cancer in Iran.
- To develop a conceptual framework for integrating these services into the national health system.
Main Methods:
- Qualitative study employing in-depth, semi-structured interviews.
- 29 participants: palliative care specialists, policymakers, healthcare providers, and parents of children with cancer.
- Data analysis using MAXQDA10 software until data saturation.
Main Results:
- Identified 'classes of palliative care services' as the main theme.
- Key categories: 'comprehensive care' (family support, familiar environment, stability) and 'social justice' (access, financial relief, quality care).
- Framework based on service levels proposed for integration.
Conclusions:
- The study provides a framework for integrating pediatric palliative care into the Iranian health system.
- Findings highlight the importance of comprehensive and socially just care delivery.
- Framework development is crucial for advancing palliative care services for children with cancer.
Abstract:
Background: Establishing palliative care services is a priority in the health system of Iran. Considering the necessity of integrating these services into the health system, this study aimed to explore the stakeholders’ perceptions about the provision of a conceptual framework for palliative care services for children with cancer according to the health system in of Iran. Methods: The present qualitative study was conducted through in-depth semi-structured interviews held with 29 participants including palliative care specialists, policy-makers, health care providers, the parents of children with cancer selected through purposive sampling, between August 2016 and February 2017. Interviews continued until saturation of data. All interviews were recorded, transcribed and analyzed using MAXQDA10 software. Results: The codes extracted from interviews produced the main theme “ classes of palliative care services” with the two main categories “comprehensive care” including, strengthening family shelter, maintaining the child in a familiar environment, achieving stability and “establishing social justice” including, easy access to services, financial relief and quality care. Conclusion: Presenting a framework based on level of palliative care services, the findings of this study paves the way for integrating these services into Iranian health system.
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