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Reservations to Participate in Biospecimen Research among Pacific Islanders
Patchareeya Kwan1, Greta Briand2, Cevadne Lee1
1Claremont Graduate University, School of Community and Global Health.
Pacific Islanders have reservations about biospecimen research due to fear, spirituality, and lack of information. Younger participants expressed more concerns, highlighting the need for targeted education to improve minority participation in health studies.
Area of Science:
- Genetics
- Public Health
- Sociology
Background:
- Pacific Islanders (PIs) face high chronic disease rates but are underrepresented in genetic research.
- Limited genetic data and biospecimen samples exist for PIs.
- This study addresses PI reservations regarding biospecimen donation for research.
Purpose of the Study:
- To investigate the reasons behind Pacific Islanders' reluctance to donate biospecimen samples for research.
- To understand the knowledge, attitudes, and beliefs of PIs concerning biospecimen research.
Main Methods:
- Pilot study utilizing a community-based participatory research approach.
- Quantitative and qualitative data collected from 60 Pacific Islander adults in southern California (mean age 61).
Main Results:
- Top reasons for non-participation: "Fear", "God or Spirituality", and "Lack of Information or Knowledge".
- Younger participants (<65 years) showed significantly more concerns than older participants (p<0.012).
- No significant gender differences in concerns were observed (p=0.84).
Conclusions:
- Effective biospecimen education is crucial for minority communities.
- Addressing misconceptions can build trust and increase participation in biospecimen research.
- Tailored educational initiatives are needed to boost Pacific Islander and other minority involvement in health studies.
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