Multidisciplinary Cleft Palate Program at BC Children's Hospital: Are We Meeting the Standards of Care?

Anita Dahiya1,2, Rebecca Courtemanche1,3, Douglas J Courtemanche1,3

  • 1Division of Plastic Surgery, Department of Surgery, University of British Columbia, Vancouver, British Columbia, Canada.

Insights

Timely cleft palate care is challenging, with only 32% of patients meeting specific program recommendations despite 51% meeting general guidelines. Improvements in resource allocation and program support are needed for better patient outcomes.

Area of Science:

  • Craniofacial medicine
  • Pediatric healthcare management
  • Public health policy

Background:

  • Cleft Palate Programs (CPPs) aim to provide timely, multidisciplinary care for patients with clefts and craniofacial conditions.
  • Adherence to established guidelines, such as those from the American Cleft Palate-Craniofacial Association (ACPA), is crucial for optimal patient outcomes.
  • Assessing the timeliness of appointments within CPPs is essential for identifying areas of care delivery that require improvement.

Purpose of the Study:

  • To evaluate the current practices of a Cleft Palate Program (CPP) regarding appointment timeliness.
  • To compare the timeliness of patient appointments against American Cleft Palate-Craniofacial Association (ACPA) population guidelines and specific CPP recommendations.
  • To identify factors influencing appointment timeliness in relation to patient age and diagnosis.

Main Methods:

  • A retrospective review of 1214 appointments within a CPP at BC Children's Hospital was conducted.
  • Data spanned from November 6, 2012, to March 31, 2015, including patients aged 0–27 years.
  • Descriptive and inferential statistics were used to analyze appointment timeliness based on ACPA standards and CPP recommendations.

Main Results:

  • Patients aged 5 years or younger, and nonsyndromic patients, were significantly more likely to have timely appointments (P < .001).
  • No correlation was found between appointment timeliness and specific diagnoses or patient distance to the clinic.
  • While 97% of nursing appointments were timely, less than 45% of other disciplines met timeliness targets; 51% met ACPA guidelines, but only 32% met specific CPP recommendations.

Conclusions:

  • The Cleft Palate Program faces challenges in delivering timely care to its patient population.
  • A significant gap exists between general ACPA guidelines and specific CPP recommendations, with only 32% of patients meeting the latter.
  • Enhancing resource allocation and program support is recommended to improve the timeliness of care and optimize patient outcomes.
Abstract

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