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Author Spotlight: Investigating the Mechanisms and Inducing Models of Polycystic Ovary Syndrome

Author Spotlight: Investigating the Mechanisms and Inducing Models of Polycystic Ovary Syndrome

Published on: July 5, 2024

Development of a question prompt list for women with polycystic ovary syndrome

Nadia N Khan¹, Amanda Vincent², Jacqueline A Boyle²

¹Monash Centre for Health Research and Implementation, School of Public Health and Preventive Medicine, Monash University, Melbourne, Victoria, Australia.

Fertility and Sterility

|July 2, 2018

Abstract

Objective:

To develop a question prompt list (QPL) for women with polycystic ovary syndrome (PCOS) and explore its acceptability and feasibility.

Design:

Nationwide online survey, interviews, and clinical pilot test.

Setting:

Australia.

Patient(S):

Two-hundred and forty-nine women online, 18 women in interviews, and 20 women in clinics.

Intervention(S):

A QPL for PCOS.

Main Outcome Measure(S):

From survey, women's likeliness to use a QPL and priority topics; from interview, QPL user-friendliness and associated feelings; from pilot, women's QPL use, perceived helpfulness, and intended future use.

Result(S):

Evidence-based guidelines and multidisciplinary experts informed the QPL development. Of 249 survey respondents, 66.7% to 68.7% reported difficulty communicating with health care providers about mood, weight management, and how PCOS affects daily life, and 85.8% indicated they were very likely to use a PCOS QPL. Women were interviewed to explore acceptability; the semistructured interviews (n = 18) revealed that the devised QPL was easy to understand, user-friendly, and encouraged information seeking and targeted question asking. The refined QPL was pilot-tested in a clinic setting to explore feasibility between 2016 and 2017: 60.0% of women asked 1 to 2 questions from the QPL, 20.0% asked several questions, and 10.0% reported the QPL helped them generate their own questions. Women agreed the QPL was helpful (95.0%) and that they would use the QPL again (90.0%).

Conclusion(S):

The PCOS QPL is acceptable and feasible, and may assist women in information seeking and targeted question asking.

Keywords:

Information seeking behavior patient participation polycystic ovary syndrome question prompt list

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