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Caregiver Strategies to Enhance Participation in Children With Autism Spectrum Disorder
Nicole Schiavone1, David Szczepanik1, John Koutras1
11 Temple University, Philadelphia, PA, USA.
OTJR : Occupation, Participation and Health
|July 12, 2018
Summary
Caregivers use various strategies to boost participation in activities for children with autism spectrum disorder (ASD). Occupational therapy practitioners should consider activity context when identifying helpful caregiver strategies.
Area of Science:
- Pediatrics
- Developmental Psychology
- Occupational Therapy
Background:
- Childhood participation is crucial for development.
- Children with disabilities often face reduced participation in activities.
- Autism Spectrum Disorder (ASD) can present unique challenges to participation.
Purpose of the Study:
- Identify caregiver strategies to enhance participation in home and community activities for children with ASD.
- Analyze the effectiveness of different caregiver strategies.
- Inform occupational therapy (OT) practice regarding childhood participation.
Main Methods:
- A survey was administered to 44 caregivers of children with ASD.
- Responses were analyzed using open and axial coding.
- Themes were developed to categorize caregiver strategies.
Main Results:
- Five themes of productive caregiver strategies emerged: adapters/facilitators, pragmatic considerations, social reframing, sensory adjustments, and desperate measures.
- Adaptations/facilitators were more common in home settings.
- Pragmatic considerations were more frequent in community settings.
- Nonproductive strategies occurred more often in the community.
Conclusions:
- Caregiver strategies vary based on the activity context (home vs. community).
- Occupational therapy practitioners must consider the activity context to support children with ASD.
- Understanding caregiver strategies can improve participation outcomes for children with disabilities.
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