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International Spinal Cord Injury Lower Urinary Tract Function Basic Data Set (version 2.0).

Fin Biering-Sørensen1, Michael Kennelly2, Thomas M Kessler3

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The International Spinal Cord Injury (SCI) Lower Urinary Tract (LUT) Function Basic Data Set (version 2.0) was revised and updated. This essential resource for SCI research and clinical practice is now available with enhanced terminology and pediatric considerations.

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Area of Science:

  • Urology
  • Neurology
  • Rehabilitation Medicine

Background:

  • The International Spinal Cord Injury (SCI) Lower Urinary Tract (LUT) Function Basic Data Set is crucial for standardizing clinical data.
  • Version 1.0 required updates based on new knowledge and expert recommendations.

Purpose of the Study:

  • To revise, review, and present the updated International SCI LUT Function Basic Data Set (version 2.0).
  • To incorporate current terminology and improve data collection guidelines.

Main Methods:

  • International collaboration involving SCI Data Sets Committee, ASIA, and ISCoS.
  • Review of existing data set with feedback from major organizations and individuals.
  • Website dissemination and incorporation of all relevant suggestions.

Main Results:

  • Adoption of International Continence Society terminology.
  • Inclusion of specific guidance for pediatric patient data collection.
  • Revisions to variables such as 'Bladder emptying,' 'Sacral Anterior Root Stimulator' (removed), and timeframes for incontinence and medication use.

Conclusions:

  • The revised International SCI LUT Function Basic Data Set (version 2.0) is finalized.
  • The complete syllabus is accessible online for global use in SCI research and clinical practice.