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Leg pains in CHD: a distressing symptom of a wider problem
Suzie Hutchinson1, David S Crossland2, Bill Chaudhry3
11Little Hearts Matter, Edgbaston,Birmingham,UK.
Insights
Children and young adults with congenital heart disease (CHD) frequently experience leg pains, significantly more than their healthy siblings. The cause is unknown, but the pain resembles "growing pains".
Area of Science:
- Pediatrics
- Cardiology
- Pain Management
Background:
- Anecdotal evidence suggests frequent leg pain in pediatric and young adult patients with congenital heart disease (CHD).
- Understanding the prevalence and characteristics of leg pain in this population is crucial for improving quality of life.
Purpose of the Study:
- To assess the burden of leg pains in children and young adults with CHD.
- To investigate potential associated factors and consequences of leg pain on daily living.
Main Methods:
- An internet-based survey was distributed by the Little Hearts Matter patient organization.
- Responses from 220 patients with CHD were analyzed and compared with those of 107 healthy siblings.
Main Results:
- 94% of patients with CHD reported leg pains, compared to 30% of siblings (p<0.001).
- Pain often occurred in lower legs, knees, or ankles, particularly at night (82.0%), and was associated with crying/screaming (49.0%).
- Aspirin use, increased activity, and older age were linked to higher pain prevalence and specific pain characteristics.
Conclusions:
- Leg pains are significantly more common in individuals with CHD than in their healthy siblings.
- The etiology of these pains remains uncertain, though they share characteristics with benign "growing pains".
Abstract:
PurposeAnecdotal reports suggest that children and young adults with CHD frequently experience pain in their legs. The purpose of this pilot study, performed by Little Hearts Matter patient organisation, was to assess the burden of leg pains in this group and begin to investigate associated factors and consequences for daily living.
Methods:
An internet-based survey was distributed by Little Hearts Matter patient organisation. After anonymisation and collation, responses were analysed and compared with their healthy siblings.
Results:
Of the 220 patients who responded, 94% reported leg pains compared with 30% of siblings (n=107; p<0.001). In respondents, pain was typically reported to occur in the lower legs or around the knees or ankles, often associated with crying and screaming (49.0%) and most commonly occurring at night-time (82.0%). Individuals taking aspirin and those who were more active were more likely to report leg pains. Older age was associated with leg pain that occurred with stress (p=0.02) and at night (p=0.05). Analgesia (64.1%) or massage (53.9%) was the preferred option for alleviation. There was no gender bias, association with diagnosis, surgical history, and/ or relationship with diagnosed orthopaedic issues.
Conclusion:
Leg pains are more frequent in those with CHD compared with their healthy siblings. Aetiology is uncertain, but pains share many common characteristics with benign "growing pains".
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