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Leveraging Patient-Reported Outcomes Using Data Visualization.

Lisa V Grossman1,2, Steven K Feiner3, Elliot G Mitchell1

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Summary
This summary is machine-generated.

Patient-reported outcomes (PROs) surveys can be difficult to understand. This study developed and tested a new interface using visualizations to improve PRO survey comprehension and patient engagement, finding it highly usable.

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Area of Science:

  • Health Informatics
  • Human-Computer Interaction
  • Patient Engagement

Background:

  • Healthcare organizations utilize patient-reported outcomes (PROs) to assess patient health status.
  • Federal policies mandate PRO collection, yet patient engagement and comprehension of surveys and results remain challenges.
  • Improving PRO survey accessibility is crucial for effective patient-centered care.

Purpose of the Study:

  • Identify design requirements for an interface to aid PRO survey completion and interpretation.
  • Develop and evaluate a novel interface to enhance patient understanding and engagement with PROs.
  • Address challenges in PRO survey comprehension and usability.

Main Methods:

  • User-centered design process including qualitative interviews and surveys with patients and healthcare providers.
  • Iterative interface design incorporating identified requirements, with a focus on aiding comprehension.
  • Usability testing of the developed interface with patients in a hospital setting.

Main Results:

  • Patients and providers recognize PROs' value in symptom reflection and care improvement.
  • A significant number of patients (6/13) experienced difficulties understanding PRO survey questions, answer choices, and results.
  • The developed interface, featuring visualizations to aid comprehension, was found to be highly usable by patients during testing.

Conclusions:

  • Visualizations are a promising strategy to enhance patient comprehension and engagement in PRO surveys.
  • Future interface designs for PRO collection should prioritize strategies that improve understanding and interaction.
  • Optimizing PRO survey interfaces can lead to more effective patient-reported data collection and utilization.