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Published on: September 19, 2019
'Place bonding' in children's hospice care: a qualitative study
Helena Dunbar1, Bernie Carter2, Jayne Brown3
1Leicester School of Nursing and Midwifery, De Montfort University, Leicester, UK.
Background:
Limited knowledge exists of parents' perceptions and experiences of children's hospices and how these contribute to the varied access and uptake of services.
Aim:
This study aimed to explore parents' perspectives and experiences of a hospice, to understand the barriers and/or facilitators to accessing a hospice, and what characteristics parents wanted from hospice provision.
Methods:
A two-phase qualitative study underpinned by a constructivist grounded theory methodology was employed. Phase 1 used focus groups to collect data from parents of children already accessing the hospice (n=24). Phase 2 used in-depth semistructured interviews with parents of children who did not use the hospice (n=7) and with parents who had previous experience of using a hospice (n=7).
Results:
A grounded theory of place bonding was developed which illustrates the cognitive journey taken by parents of children with life-limiting conditions considering/receiving hospice care for their child.
Conclusions:
Finding a place where they belonged and felt at 'home' made the decision to accept help in caring for their child with a life-limiting condition more acceptable. The theory of place bonding offers children's hospices a new perspective from which to view how parents access, accept and build relationships at the hospice.
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