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Epidemiology of ACHD: What Has Changed and What is Changing?

Abigail Khan1, Michelle Gurvitz2

  • 1Oregon Health and Science University.

Progress in Cardiovascular Diseases
|August 21, 2018
PubMed

Insights

The number of adults living with congenital heart disease (ACHD) is increasing due to better treatments for children with congenital heart disease (CCHD). Accurate prevalence data is crucial for healthcare planning and resource allocation for this growing population.

Area of Science:

  • Cardiology
  • Public Health

Background:

  • The global population of adults with congenital heart disease (ACHD) is growing, estimated at 1.4 million in 2010.
  • Advances in pediatric interventions have improved survival rates for children with congenital heart disease (CCHD).
  • This demographic shift presents challenges for healthcare systems and providers.

Purpose of the Study:

  • To highlight the growing population of adults with congenital heart disease (ACHD).
  • To emphasize the need for accurate prevalence data in adults.
  • To advocate for resources to meet the unique health needs of ACHD patients.

Main Methods:

  • Review of existing literature and population estimates.
  • Analysis of survival trends in congenital heart disease (CCHD) treatment.
  • Discussion of the challenges in defining adult congenital heart disease (ACHD) prevalence.

Main Results:

  • An increasing number of individuals are surviving into adulthood with congenital heart disease (CHD).
  • The prevalence of ACHD is challenging to define accurately, unlike CCHD at birth.
  • The growing ACHD population requires specialized healthcare considerations.

Conclusions:

  • Improved survival of CCHD necessitates a focus on adult care.
  • Accurate ACHD prevalence data is vital for healthcare planning and advocacy.
  • Healthcare systems must adapt to the increasing demands of ACHD patients.

Keywords:
Adult congenital heart diseaseEpidemiologySurveillance

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