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Related Experiment Videos

Rights of the Dying Child: The Nurses' Perception.

Pierina Lazzarin1, Elena Marinelli2, Marcello Orzalesi3

  • 11 Veneto Regional Center for Pediatric Palliative Care and Pain Control, Department of Women's and Children's Health, Padua General Hospital , Padua, Italy .

Journal of Palliative Medicine
|September 27, 2018
PubMed
Summary

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Nurses largely agree with the Charter of the Rights of the Dying Child principles but report challenges in implementation. Training is crucial for improving communication and pediatric palliative care for children nearing the end of life.

Area of Science:

  • Pediatric Nursing
  • Bioethics
  • Palliative Care

Background:

  • The Charter of the Rights of the Dying Child provides a professional framework for end-of-life care in pediatric settings.
  • Understanding nurses' perspectives on this Charter is essential for improving care quality for terminally ill children.

Purpose of the Study:

  • To assess nurses' agreement with the principles of the Charter of the Rights of the Dying Child.
  • To evaluate nurses' perceptions of the implementation of these rights in hospital settings.

Main Methods:

  • A multicenter, cross-sectional study involving 119 nurses from 5 pediatric hospitals in northern Italy.
  • An online questionnaire was used to gather data on nurses' agreement and perceived implementation of the Charter's principles.
Keywords:
dyinghuman rightspediatric palliative care

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Main Results:

  • High agreement (86.6-100%) was observed regarding the Charter's principles.
  • Implementation ratings were lower (42.9-89.1%).
  • Older nurses and those in smaller hospitals were less likely to uphold the child's right to information and decision-making (p<0.01). Postgraduate training correlated with increased awareness (p=0.01).

Conclusions:

  • The Charter serves as a valuable guideline for pediatric nurses in end-of-life care.
  • Enhanced training is vital to improve nurses' communication skills and the provision of pediatric palliative care for all eligible families.