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Patient and Provider Perspectives on Mammographic Breast Density Notification Legislation
Elissa V Klinger1,2,3,4, Celia P Kaplan1,2,3,4, Stella St Hubert1,2,3,4
1Division of General Medicine and Primary Care (EVK, SSH, JSH), Brigham and Women's Hospita, Boston, Massachusetts.
MDM Policy & Practice
|October 6, 2018
Summary
Understanding mammographic breast density (MBD) notification legislation is crucial. This study reveals diverse perspectives among women, primary care physicians, and radiologists, highlighting the need for clear communication tools.
Area of Science:
- Radiology
- Public Health
- Health Policy
Background:
- Patient advocacy has driven mammographic breast density (MBD) notification laws.
- Limited understanding exists regarding stakeholder responses to MBD legislation.
Purpose of the Study:
- To explore qualitative perspectives of women, primary care physicians (PCPs), and breast radiologists on MBD notification.
- To inform best practices for implementing MBD notification legislation.
Main Methods:
- Content analysis of qualitative data.
- Focus groups with women (n=16).
- In-depth interviews with PCPs (n=7) and breast radiologists (n=7).
Main Results:
- Three key themes emerged: knowledge/attitudes towards legislation, concerns about consequences, and recommended actions.
- Stakeholder perspectives (women, PCPs, radiologists) often differed significantly across themes.
- Identified varied viewpoints on MBD information and its implications.
Conclusions:
- Emphasizes the need for clear, concise tools for patients and providers.
- Facilitates understanding of MBD within overall breast cancer risk.
- Provides guidance on appropriate next steps following MBD notification.
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