Palliative Care for Children with Central Nervous System Malignancies
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Published on: April 29, 2013
Peter H Baenziger1, Karen Moody2
1Peyton Manning Children's Hospital, Ascension St. Vincent, 2001 West 86th Street, Indianapolis, IN 46260, USA. peter.baenziger@ascension.org.
Insights
Pediatric palliative care enhances quality of life for children with central nervous system (CNS) malignancies by managing symptoms and supporting families. All neuro-oncology providers should develop these essential primary palliative care skills.
Area of Science:
- Pediatric oncology
- Palliative care medicine
Background:
- Children with central nervous system (CNS) malignancies face significant symptom burden and mortality risk.
- Pediatric palliative care is a specialized medical field focused on improving quality of life and reducing suffering for children with life-threatening illnesses and their families.
Purpose of the Study:
- To review the fundamental principles of primary pediatric palliative care.
- To emphasize the importance of integrating palliative care skills into neuro-oncology practice.
Main Methods:
- This chapter reviews existing literature and established practices in pediatric palliative care.
- It focuses on the core competencies required for primary palliative care delivery.
Main Results:
- Primary palliative care encompasses essential skills such as basic symptom management.
- Facilitating goals-of-care discussions and coordinating hospice transitions are crucial components.
- These skills are attainable and necessary for all neuro-oncology care providers.
Conclusions:
- Integrating primary palliative care into neuro-oncology is vital for optimizing care for children with CNS malignancies.
- All healthcare providers involved in pediatric neuro-oncology should be equipped with fundamental palliative care skills.
- This approach aims to minimize suffering and enhance the quality of life for affected children and their families.
Abstract:
Children with central nervous system (CNS) malignancies often suffer from high symptom burden and risk of death. Pediatric palliative care is a medical specialty, provided by an interdisciplinary team, which focuses on enhancing quality of life and minimizing suffering for children with life-threatening or life-limiting disease, and their families. Primary palliative care skills, which include basic symptom management, facilitation of goals-of-care discussions, and transition to hospice, can and should be developed by all providers of neuro-oncology care. This chapter will review the fundamentals of providing primary pediatric palliative care.
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