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Patients and families often pursue aggressive treatment for underlying illnesses, even at life's end, due to needs beyond effective care. Understanding these motivations, such as agency and compassion, is key for compassionate clinical practice.

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Area of Science:

  • Medical Ethics
  • Palliative Care
  • Patient-Centered Medicine

Background:

  • End-of-life care discussions can be complex, with differing perspectives between patients, families, and clinicians.
  • Requests for continued treatment at the end of life may stem from motivations beyond purely clinical efficacy.

Purpose of the Study:

  • To evaluate why redirection attempts, particularly at the end of life, often fail.
  • To understand the underlying reasons patients and families insist on treating the primary illness.

Main Methods:

  • Qualitative analysis of patient and family motivations in treatment decisions.
  • Exploration of clinician perspectives on patient requests for care.

Main Results:

  • Clinicians often perceive treatment requests solely as a pursuit of effective care.
  • Patients and families may request treatment to assert agency, avoid responsibility for outcomes, or express compassion.

Conclusions:

  • Motivations for treatment at the end of life often extend beyond achieving effective care.
  • Recognizing these deeper factors aids clinicians in navigating conflicts and providing compassionate care.