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Development of an mHealth platform for HIV Care: Gathering User Perspectives Through Co-Design Workshops and
Benjamin Marent1, Flis Henwood1, Mary Darking1
1School of Applied Social Science, University of Brighton, Falmer, United Kingdom.
JMIR Mhealth and Uhealth
|October 20, 2018
Summary
Co-designing mHealth platforms with people living with HIV (PLWH) and clinicians is crucial for effective HIV care. This study highlights user needs and concerns for developing user-centered mobile health solutions.
Area of Science:
- Digital health interventions
- Patient-centered care
- Human-computer interaction in healthcare
Background:
- HIV incidence remains a concern in Europe, necessitating innovative healthcare solutions.
- Mobile health (mHealth) offers potential for improved quality and cost-effectiveness in healthcare delivery.
- Low adoption rates and perceived low quality of mHealth apps highlight the need for user involvement in design.
Purpose of the Study:
- To co-design an mHealth platform with people living with HIV (PLWH) and clinicians across 5 EU sites.
- To understand user experiences and identify desired mHealth functionalities for HIV care.
- To explore potential benefits and concerns associated with mHealth in HIV management.
Main Methods:
- Conducted 14 co-design workshops and 22 semistructured interviews between January and June 2016.
- Involved 97 PLWH and 63 clinicians in the co-design process.
- Employed thematic and iterative analysis drawing on grounded theory techniques.
Main Results:
- Participants expressed concerns about stigma and how mHealth can aid HIV management.
- Clinicians raised questions about IT system compatibility and patient targeting for mHealth.
- Identified desired functionalities include medical (test results, medication/appointment management), social (peer support), and general features (security, privacy, credibility).
Conclusions:
- Co-design facilitated early user engagement, embedding patient and clinician feedback into the mHealth platform development.
- Understanding user perspectives on approaching, imagining, and anticipating technology is vital for successful design and development.
- This approach provides valuable insights for creating effective and user-accepted mHealth solutions in HIV care.
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