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Culture of Bladder Cancer Organoids as Precision Medicine Tools
Published on: December 28, 2021
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Patient-Centered Outcomes in Bladder Cancer.
1Department of Urology, Seattle Cancer Care Alliance, University of Washington, 1959 NE Pacific St, Box 356510, Seattle, WA, 98195, USA. jlgore@uw.edu.
Current Urology Reports
|October 30, 2018
Summary
Patients prioritize quality of life, financial impact, and caregiver effects in bladder cancer care, often beyond what experts focus on. Research should incorporate these patient-centered outcomes for better treatment decisions.
Area of Science:
- Oncology
- Patient-Centered Outcomes Research
Background:
- Patient-centered outcomes research (PCOR) aims to align treatments with individual patient needs and preferences.
- PCOR emphasizes studying treatment effects on outcomes most valued by patients.
Purpose of the Study:
- To review current knowledge regarding outcomes prioritized by patients in bladder cancer care.
- To highlight the importance of patient-reported outcomes and unique patient priorities in bladder cancer research.
Main Methods:
- Literature review summarizing current knowledge on patient-prioritized outcomes.
- Analysis of common versus unique patient-prioritized outcomes in bladder cancer.
Main Results:
- Patients and experts commonly prioritize survival, but patients place higher value on quality of life.
- Patients uniquely prioritize financial costs, emotional well-being (anxiety, depression), and caregiver impact.
- Patient-reported outcomes are crucial but not all patient-centered outcomes are patient-reported.
Conclusions:
- Incorporating patient-prioritized outcomes, including those often overlooked by experts, is essential for effective bladder cancer care.
- The Patient Survey Network offers a platform to gather patient input on bladder cancer research priorities.
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