Healthcare access and services use among US children with autism spectrum disorder

Olivia J Lindly1, Katharine E Zuckerman2, Karen A Kuhlthau1

  • 11 Harvard Medical School and Massachusetts General Hospital, USA.

Insights

Healthcare access issues in children with autism spectrum disorder (ASD) are linked to service use. Problems accessing care were associated with fewer well-child visits but more emergency department visits for children with ASD.

Area of Science:

  • Pediatric Healthcare
  • Autism Spectrum Disorder Research
  • Health Services Research

Background:

  • Access to healthcare is crucial for children with autism spectrum disorder (ASD).
  • Understanding how healthcare access problems impact service utilization in this population is essential for targeted interventions.
  • Previous research has highlighted disparities in healthcare access for children with ASD.

Purpose of the Study:

  • To examine the associations between healthcare access problems and the use of various healthcare services among US children with ASD.
  • To identify specific service use patterns associated with delayed access, affordability issues, and difficulties finding primary care providers.
  • To explore potential effect modification by socioeconomic status and race/ethnicity.

Main Methods:

  • Analysis of data from the 2011-2014 National Health Interview Survey.
  • Inclusion of 651 children aged 2-17 years diagnosed with ASD.
  • Use of multivariable regression models to assess associations between healthcare access problems (delays, affordability, provider access) and service use (office visits, well-child visits, flu vaccine, prescriptions, emergency department visits).

Main Results:

  • Twenty-nine percent of children with ASD experienced at least one healthcare access problem.
  • Healthcare access problems were associated with lower odds of well-child visits and prescription medication use.
  • Conversely, access problems were linked to higher odds of frequent office visits and emergency department use, particularly among higher socioeconomic status and White, non-Hispanic children.

Conclusions:

  • Healthcare access problems significantly influence service utilization patterns in children with ASD.
  • Specific access barriers correlate with both underuse (preventive care, medications) and overuse (emergency care) of services.
  • Interventions, including insurance expansion, are necessary to mitigate these access barriers and improve healthcare delivery for children with ASD.

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