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Expert patient: the story of a social movement
1Enseignantchercheur, UPMC-Sorbonne universités, Paris, France.
Abstract:
Expert patient: the story of a social movement. The recognition of patients' expertise appeared in the 80's in the Anglo-Saxon culture. Originally linked to activism, social movements and non-profit organizations of fight against AIDS, this concept has given rise to multiple name variations such as resource-patient, user-peer or mediator-peer, intervening patient. Despite the debates regarding the name of expert-patient, the expertise of patients' experience with chronic illness leads to a recognition and the patient has become a key player in health decision-making bodies, in therapeutic education and in the improvement of healthcare system.
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