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Improving decision making in larynx cancer by developing a decision aid: A mixed methods approach
Japke F Petersen1, Adriana Berlanga2, Martijn M Stuiver1,3
1Department of Head and Neck Surgery and Oncology, The Netherlands Cancer Institute, Amsterdam, The Netherlands.
The Laryngoscope
|January 22, 2019
Summary
A new online patient decision aid (PDA) was developed for advanced larynx cancer patients. This tool, created with patient and physician input, improves treatment choice counseling and was found satisfactory by users.
Area of Science:
- Oncology
- Patient Care
- Medical Informatics
Background:
- Advanced larynx cancer patients face complex treatment decisions (radiotherapy, chemoradiotherapy, laryngectomy).
- Disagreement among clinicians complicates treatment choices for patients.
- There is a need for improved patient counseling and decision support.
Purpose of the Study:
- To develop a comprehensible and user-friendly online patient decision aid (PDA) for advanced larynx cancer.
- To evaluate the PDA's usability, feasibility, and satisfaction among patients and physicians.
- To enhance the shared decision-making process in laryngeal cancer treatment.
Main Methods:
- Development followed International Patient Decision Aid (PDA) Standards.
- Three phases included semi-structured interviews with patients and physicians, thinking-out-loud sessions, and questionnaires.
- The PDA underwent revisions based on feedback, incorporating video animations to improve readability.
Main Results:
- Patients and physicians agreed on the necessity of a PDA for advanced larynx cancer.
- The developed PDA was considered a significant improvement over current counseling methods.
- Both patients and physicians found the online PDA satisfactory and easy to use.
Conclusions:
- A comprehensible and easy-to-use online patient decision aid for advanced larynx cancer has been successfully developed.
- The PDA was found satisfactory by both patients and physicians, indicating its potential to improve counseling.
- Further validation in clinical practice is underway via a multicenter trial to confirm feasibility and satisfaction.
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