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The Importance of Evaluating Health Disparities Research
Bruce A Dye1, Deborah G Duran1, David M Murray1
1Bruce A. Dye is with the National Institute of Dental and Craniofacial Research, National Institutes of Health (NIH), Bethesda, MD. Deborah G. Duran, Tilda Farhat, and Nancy Breen are with the National Institute on Minority Health and Health Disparities, NIH, Bethesda. David M. Murray is with the Office of the Director, Office of Disease Prevention, NIH, Bethesda. John W. Creswell is with the University of Michigan Medical School, Ann Arbor. Patrick Richard is with Preventive Medicine and Biostatistics, Uniformed Services University of Health Sciences, Bethesda. Michael M. Engelgau is with the National Heart, Lung, and Blood Institute, NIH, Bethesda. Tilda Farhat and Nancy Breen are also Guest Editors for this supplement issue.
Abstract:
Health disparity populations are socially disadvantaged, and the multiple levels of discrimination they often experience mean that their characteristics and attributes differ from those of the mainstream. Programs and policies targeted at reducing health disparities or improving minority health must consider these differences. Despite the importance of evaluating health disparities research to produce high-quality data that can guide decision-making, it is not yet a customary practice. Although health disparities evaluations incorporate the same scientific methods as all evaluations, they have unique components such as population characteristics, sociocultural context, and the lack of health disparity common indicators and metrics that must be considered in every phase of the research. This article describes evaluation strategies grouped into 3 components: formative (needs assessments and process), design and methodology (multilevel designs used in real-world settings), and summative (outcomes, impacts, and cost). Each section will describe the standards for each component, discuss the unique health disparity aspects, and provide strategies from the National Institute on Minority Health and Health Disparities Metrics and Measures Visioning Workshop (April 2016) to advance the evaluation of health disparities research.
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