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A Protocol to Assess Feasibility, Acceptability, and Usability of Mobile Technology for Symptom Management in

Jacqueline Vaughn1, Erika Summers-Goeckerman, Ryan J Shaw

  • 1Jacqueline Vaughn, BSN, RN, CHSE, is a PhD candidate, Duke University School of Nursing, Durham, North Carolina. Ryan J. Shaw, PhD, RN, is Associate Professor, Duke University School of Nursing, Durham, North Carolina. Erika Summers-Goeckerman, MSN, RN, CPNP-AC, is Pediatric Blood and Marrow Transplant Nurse Practitioner, Hematology-Oncology Division, Duke Health, Durham, North Carolina. Nirmish Shah, MD, is Assistant Professor of Medicine, Hematology-Oncology Division, Duke Health, Durham, North Carolina.

Nursing Research
|February 6, 2019
PubMed

Insights

This study explores using mobile health (mHealth) technology to monitor symptoms in pediatric blood and marrow transplant (PBMT) patients. Results will inform personalized symptom management strategies for this high-risk population.

Area of Science:

  • Pediatric Hematology/Oncology
  • Digital Health
  • Patient-Reported Outcomes

Background:

  • Pediatric blood and marrow transplant (PBMT) patients face significant symptom distress.
  • Mobile health (mHealth) technologies offer potential for enhanced symptom management through patient-generated data.
  • Personalized health strategies can be fostered by integrating mHealth data.

Purpose of the Study:

  • To present a study protocol for exploring the feasibility, acceptability, and usability of mHealth integration for PBMT patients.
  • To investigate the collection and monitoring of symptom data using mHealth devices in PBMT patients.
  • To lay the groundwork for personalized symptom management strategies in pediatric transplant care.

Main Methods:

  • An exploratory mixed-methods design was used with 20 PBMT patients.
  • Real-time symptom data were collected via a custom mHealth app and a wearable device.
  • Patient-Reported Outcomes Measurement Information System (PROMIS) surveys and interviews were conducted monthly.

Main Results:

  • Feasibility and usability data for daily symptom monitoring via mobile devices were collected.
  • PROMIS surveys provided insights into fatigue, pain, and sleep disturbances.
  • Patient interviews offered qualitative data on experiences with mHealth devices.

Conclusions:

  • This study is among the first to assess the feasibility, acceptability, and usability of multi-device mHealth integration for PBMT symptom data.
  • Results will advance understanding of symptom presentation and clustering in pediatric transplant patients.
  • Findings aim to inform the development of effective symptom management strategies for high-risk pediatric populations.
Abstract

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