Internalized Stigma in Patients with Eosinophilic Gastrointestinal Disorders

Area of Science:

• Gastroenterology
• Psychology
• Health Services Research

Background:

• Eosinophilic gastrointestinal disorders (EGID) are chronic conditions requiring long-term management.
• The psychological burden of chronic illness, including internalized stigma, can significantly affect patient well-being.

Purpose of the Study:

• To investigate the prevalence and impact of internalized stigma in patients with EGID.
• To examine the relationship between internalized stigma and psychosocial outcomes, quality of life, and healthcare utilization in EGID patients.

Main Methods:

• A cross-sectional study involving 149 adult patients with a self-reported EGID diagnosis.
• Validated questionnaires assessed internalized stigma, disease-specific quality of life, anxiety, and depression.
• Healthcare utilization data, including outpatient visits and endoscopies, were collected.

Main Results:

• Increased internalized stigma correlated with lower disease-specific quality of life and higher levels of anxiety and depression.
• Patients reporting greater internalized stigma perceived treatments as less effective.
• Specific stigma subscales (alienation, discrimination) were linked to increased outpatient visits and endoscopies.

Conclusions:

• Internalized stigma is a significant issue for EGID patients, negatively affecting their mental health and perceived treatment efficacy.
• Healthcare providers should screen for internalized stigma and consider its impact on patient care.
• Integrating psychogastroenterology services may mitigate the adverse effects of stigma in EGID management.