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The eHealth Trust Model: A Patient Privacy Research Framework.
Nelson Shen1, John Strauss1, Michelle Silver1
1Institute of Health Policy, Management and Evaluation, University of Toronto, ON.
Patient privacy concerns hinder health information exchange (HIE). Understanding patient perspectives requires a standardized approach to contextual factors influencing their views on HIE benefit-risk tradeoffs.
Area of Science:
- Health Informatics
- Patient Privacy Research
- Health Information Exchange
Background:
- Patient privacy concerns are a significant barrier to health information exchange (HIE) adoption.
- Current research on patient perspectives regarding privacy in HIE is fragmented and limited.
- Existing evidence suggests patient privacy views are context-dependent and involve benefit-risk assessments.
Purpose of the Study:
- To address the fragmented understanding of patient perspectives on privacy in HIE.
- To develop a standardized framework for assessing contextual factors influencing patient privacy views.
- To guide future research on patient privacy in the context of HIE.
Main Methods:
- Development of the eHealth Trust Model.
- The model is evidence-based and theory-grounded.
- The framework is designed to guide future patient privacy research.
Main Results:
- The eHealth Trust Model provides a conceptual framework for understanding patient privacy perspectives.
- It facilitates a more consistent assessment of contextual factors.
- It aims to improve the understanding of attitudes towards HIE.
Conclusions:
- A standardized approach is needed to consistently assess patient privacy concerns in HIE.
- The eHealth Trust Model offers a framework to guide future research in this area.
- Further research is essential to fully understand and address patient privacy in HIE.
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