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Haematologists and palliative care: a multicentric qualitative study.
Colombe Tricou1,2, Sophie Munier3, Nicolas Phan-Hoang3
1Palliative Care, Hospices Civils de Lyon, Lyon, France colombe.tricou@chu-lyon.fr.
BMJ Supportive & Palliative Care
|February 28, 2019
Summary
Haematologists perceive palliative care positively but associate it with end-of-life care. Renaming it "supportive care" could improve patient referrals and access to early palliative care services.
Area of Science:
- Oncology
- Palliative Care
- Hematology
Background:
- Early palliative care improves quality of life and symptom management in advanced cancer patients.
- Patients with hematological malignancies experience high distress but have limited access to palliative care.
- Understanding haematologists' perceptions is crucial for improving palliative care integration.
Purpose of the Study:
- To explore haematologists' perceptions of palliative care.
- To identify barriers hindering patient referral to palliative care services.
- To inform strategies for enhancing palliative care access in hematological malignancies.
Main Methods:
- Qualitative grounded theory methodology employed.
- Semi-structured interviews conducted with 24 medical haematologists in France.
- Interviews focused on referral triggers and perceptions of palliative care.
Main Results:
- Palliative care is recognized for alleviating suffering and improving end-of-life care.
- A significant barrier is the negative association of 'palliative' with the end of life.
- Haematologists expressed a need for collaboration and perceived early intervention as beneficial.
Conclusions:
- The term 'palliative care' itself acts as a primary barrier to referral.
- Haematologists suggest 'supportive care' as a preferred alternative term.
- Rebranding may improve understanding and facilitate earlier integration of palliative care.
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