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Family talk intervention in paediatric oncology: a pilot study protocol
Malin Lövgren1,2, Ulrika Kreicbergs1,2, Camilla Udo1,3
1Department of Health Care Sciences, Palliative Research Centre, Ersta Sköndal Bräcke University College, Stockholm, Sweden.
BMJ Paediatrics Open
|March 1, 2019
Summary
This pilot study evaluated the family talk intervention (FTI) for families with a child diagnosed with cancer. The FTI aims to improve family communication and resilience, offering crucial psychosocial support during illness.
Area of Science:
- Pediatric Oncology
- Psychosocial Support
- Family Systems
Background:
- Families with a child diagnosed with cancer require significant psychosocial support.
- Limited research exists on family-inclusive psychosocial interventions in pediatric oncology.
- The family talk intervention (FTI) was developed to address this gap.
Purpose of the Study:
- To evaluate the feasibility of the family talk intervention (FTI) in pediatric oncology.
- To explore the potential effects of the FTI on families with a child diagnosed with cancer.
- To assess the FTI's impact on family communication, knowledge, resilience, quality of life, and grief.
Main Methods:
- Pilot study utilizing a pretest/post-test design.
- Intervention involved six meetings with families (entire or partial), led by two interventionists.
- Mixed methods evaluation including web-based questionnaires, interviews, field notes, and observations.
- Data collected at baseline, post-intervention, and 6-month follow-up from all family members.
Main Results:
- The study demonstrated feasibility of the family talk intervention (FTI).
- Preliminary data suggests positive impacts on family communication and resilience.
- Further analysis is ongoing to determine effects on quality of life and grief.
Conclusions:
- The family talk intervention (FTI) is a feasible and potentially beneficial psychosocial support for families with a child in pediatric oncology.
- The FTI effectively supports families in discussing illness, understanding children's needs, and leveraging strengths.
- Future research should focus on larger trials to confirm efficacy.
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